From Paperboy to Rare Disease Advocate

Written By Kenny Kane

[audio mp3="https://pdcn.co/e/rss.art19.com/episodes/c0468b07-ba57-4762-b8f1-9b5855fd0dc3.mp3?rss_browser=BAhJIgljdXJsBjoGRVQ%3D--435795d5c850773aaa4739d968bd77a1dfd6f301"][/audio] From Paperboy to Rare Disease Advocate

On the show today, Matthew is joined live in-studio by Larry Reines, a young adult rare disease advocate and Founding Member of the Aaron Myer Consulting Group. From humble beginnings as a 12-year-old paperboy learning the ropes of supply chain, customer service, and accounting, his life took a nasty turn when he was diagnosed with an extremely rare condition known as Progressive Myeloproliferative Disorder. 27 years later, he's still here and is thriving as USA Swimming certified coach, and master of his own domain as a business leader, philanthropist and patient advocate for young adults and the rare disease community.

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Kenny Kane

Kenny Kane is an entrepreneur, writer, and nonprofit innovator with 15+ years of experience leading organizations at the intersection of business, technology, and social impact. He is the CEO of Firmspace, CEO of the Testicular Cancer Foundation, and CTO/co-founder of Gryt Health.

A co-founder of Stupid Cancer, Kenny has built national awareness campaigns and scaled teams across nonprofits, health tech, and real estate. As an author, he writes about leadership, resilience, and building mission-driven organizations.

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