VAX ON: Unvaxed Kids, Cruising Through COVID, and NO SCREAMING!
On this week's episode of VAX ON, Elura and Matthew discuss the CDC’s updated COVID-19 guidelines for minors, and some unexpected state guidelines for California’s theme parks. They also discuss concerns about digital vaccine passports and the re-opening of major cruise lines.
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Thanks, Pandemic! (The Kids May Not Be Alright)
On the show today “Health/Technology Researcher” — and returning champion — Susannah Fox joins me along with Vicky Rideout, a researcher on children and media to discuss the findings from their brand new study: Coping with COVID-19: How Young People Use Digital Media to Manage Their Mental Health. What is absolutely fascinating about all of this is that there are actually two sets of data, one concluded in 2018 and then, with the pandemic, they repeated the same study and compared the differences. Spoiler – the results were shocking and yet… not shocking as you can imagine. Thank you to the generous sponsors who made this study possible: Hopelab, California Health Care Foundation, and Common Sense Media.
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VAX ON: Reprogramming Our Minds, Unreported COVID-19 Deaths, and Yo-Yo Ma
In this episode of VAX ON, Matthew Zachary and Elura Nanos talk about how living through a pandemic re-wires your memory. They also discuss unreported COVID-19 deaths and Yo-Yo Ma’s surprise cello concert at a vaccination site in Massachusetts.
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[BONUS] "Jen Horonjeff is Noncompliant" I Want My Vaccine, Dammit!
The vaccine is yet another classic case of patients who want to be compliant, but can’t because the system prevents it, or at least makes it extremely complicated and confusing. In this week’s episode, Jen shares her frustrations trying to get a vaccine and her hopes that her laundry list of diseases will qualify her eventually.
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Dr. Kellie Stecher: Proud Band Geek and COVID-19 Burnout Hacker
Dr. Kellie Stecher is OB/GYN at M Health Fairview Center for Women and the Co-Founder/President at Patient Care Heroes, a mental health service and community support platform for front-line medical professionals. A proud band geek whose favorite book is To Kill A Mockingbird, Kellie lives the Hippocratic oath every day while juggling a career, a family, two kids, and the impact of COVID. Our conversation focuses on reproductive rights, physician burnout lifehacks, healthcare access in rural communities, empathy in med school, and oh so much more.
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VAX ON: One-Year Quarantineaversary, Child Marriages, and How Sex-Related Businesses Got the COVID-19 Shaft
In this episode of VAX ON, Matthew Zachary and Elura Nanos reminisce during the 1 year anniversary of the coronavirus pandemic. They also discuss the impacts of COVID-19 on child marriages, and how sex-related businesses have been excluded from COVID-19 financial aid.
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Scrambled Eggs: An Infertility Advocacy Rantfest with Alice Crisci
Back on the show today in this special bonus episode of Out of Patients, a little segment we're calling "Scrambled Eggs." with returning champion guest Alice Crisci, cancer survivor, fertility activist, and Founder and CEO of MedAnswers. What triggered this conversation was a recent article in Ms. Magazine by cancer survivor Madison Chapman opening up a wormhole about all the stupidity and ridiculousness surrounding fertility preservation and fertility rights issues; unnecessary obstacles that somehow still lie in the road nearly 45 years later when the science first began. Note that if you are interested in fertility advocacy and what you are about to listen to pisses you off just enough, our partnership with the nonprofit RESOLVE may be just the thing you're looking for to take action, join the movement, and give back. Let's jump down the rabbit hole.
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The #BCSM Podcast, EP3: Ending Health Disparities
In this series finale crossover episode, we meet Maimah Karmo, President, and CEO of the Tigerlily Foundation, and learn about her journey to end disparities for young breast cancer patients of color. If you like this series, be sure to subscribe, leave a rating, a review, share on social media, and please tell your community to check it out. Your voice matters. Tell us your story in your voice and give us your feedback about the series by leaving us a good old-fashioned voicemail at (855) AUDIO66 (283-4666.) And don’t forget to join the #BCSM weekly tweet chat live every Monday at 9pm/ET on Twitter.
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VAX ON: Matt & Elura Got Vaxxed, COVID Passports, and Marching Band Pods
In this episode of VAXON, Matthew Zachary and Elura Nanos debrief after receiving their second COVID-19 vaccine. They also discuss the CDC’s updated protocol for those who are vaccinated, how airlines are planning to help vaccinated passengers cross borders with ease, and how one intrepid high school marching band in Washington State came up with a clever way to keep their rehearsals on track.
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The #BCSM Podcast, EP2: Community of Communities
In this crossover episode, we meet breast cancer advocates and users of #BCSM, Liza Bernstein, Anne Marie Mercurio, Christine Hodgdon, and Julia Maues. We find out how they got involved in #BCSM and how they utilized the hashtag to further their advocacy. If you like this series, be sure to subscribe, leave a rating, a review, share on social media, and please tell your community to check it out. Your voice matters. Tell us your story in your voice and give us your feedback about the series by leaving us a good old-fashioned voicemail at (855) AUDIO66, that’s 855-AUDIO66 (283-4666.) And don’t forget to join the #BCSM weekly tweet chat live every Monday at 9pm/ET on Twitter.
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The Art of Survivorship: David M. Bailey and Dr. Adam Dachman
This episode of Out of Patients features a new segment called The Art of Survivorship (AOS). Today, Matthew takes a trip down memory lane to highlight and recognize two fellow musicians affected by cancer. Prepare to be inspired by Dr. Adam Dachman and the late David M. Bailey in this special episode.
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The #BCSM Podcast, EP1: Origin Story
Welcome back to Out of Patients! For months here at OffScrip Media, we’ve been working with breast cancer patient advocate Alicia Staley on a narrative series about how breast cancer patients dared to be the change they wished to see, saw an opportunity to fill a need, and created the Breast Cancer Social Media Community. Now, OffScrip Media is proud to present The #BCSM Podcast. What began in 2011 as a conversation on Twitter has evolved into a global network of patients, caregivers, clinicians, and researchers dedicated to empowering those affected by breast cancer.The next three episodes of Out Of Patients will be crossover episodes from the BCSM podcast. You can listen on their feed as well by searching “Hashtag BCSM podcast”
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VAX ON: Snowpocalypse, Fake Grannies, and Opening Schools Someday?
In this first-ever episode of VAXON, Matthew Zachary and Elura Nanos discuss a very inconvenient snowpocalypse, fake grandmas, Biden’s goal to open K-8 schools, and more!
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Don't Start A Charity: An Cautionary Origin Story
Elizabeth Woolfe is a veteran nonprofit consultant and unmatched sherpa guide in the business, management, and organizational culture of charity. Full disclosure: Liz also one of my best friends in the world and saved my ass more than a few times serving as strategic counsel to Stupid Cancer during the latter half of my tenure. As of this recording, we pay tribute to the late Cloris Leachman by preparing you for today's "Roll, Roll, Roll in Ze Hay."
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VAX ON: A New Weekly Roundup of Healthcare News Fuckery
Award-winning hosts and patient advocates Matthew Zachary and Elura Nanos react to the great vaccine rollout of 2021. They’ll sort through the week’s healthcare news and related fuckery as America gets its vax on and shows #COVID19 the door.
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[BONUS] "Jen Horonjeff is Noncompliant" The Clinical Trial Quid-Pro-Quo
On this bonus episode of "Jen Horonjeff is Noncompliant," Jen brings to Matthew Zachary's attention the idea that patients who enroll in clinical trials should more than benefit from the therapeutic aspects of treatment. After all, aren't they essentially helping a private sector on their go-to-market drug approval and commercialization strategy? After all, if you're helping a business make more money, shouldn't you be entitled to some of that sweet, sweet cheddar yourself? Say, perhaps, some equity stake in their growth? Food for thought because inquiring minds want to know.
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Dr. Mark Lewis Is the Twitter We're Looking For
Dr. Mark Lewis is the Director of GI Oncology at Intermountain Healthcare in Salt Lake City. He is also a young adult survivor of pancreatic cancer, a thought leader on #MEDTwitter, and one of the funniest and down-to-earth physicians you’re likely to meet. Motivated by losing his father to cancer, coupled with a genetic predisposition for empathy, his story of “when the doctor gets cancer” preaches the virtues of data and truth. Prepare to find out what happens when Sid the Science Kid meets Dexter’s Lab meets Pickle Rick. Follow Mark on Twitter at @DrMarkLewis
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Biomarkers: Where Are All the Patents At?
On the show today, Bio Entrepreneur Marty Keiser, Founder of IV BioHoldings, LiquidLung, HepGene, and Mammogen. What is a biomarker? Hint - it's not inside a box of Crayola. Biomarkers are aspects of our genes that do so much more than determine our height, eye color, and predisposition to cancer. Diagnostics today can be used to detect earlier, diagnose easier, and treat better. That's what Marty and his entrepreneurial ventures are all about. It's not just making cancer suck less; it's using pioneering diagnostics to make radiation and chemo not just suck less, but perhaps not even be needed at all. Enjoy the show.
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The Alliance for Health Policy: Don't Mess With Us
On the show today: President and CEO of the Alliance for Health Policy, Sarah Dash. AHP —or “The Alliance” — is a nonpartisan nonprofit dedicated to informing policymakers on critical health policy issues. I know it sounds wonky but it’s actually awesome because they are the good kind of “how the sausage is made.” After all, industry puts too much burden on patients to navigate the healthcare system. Listen in as we geek out over covalent bonds, how 20-something staffers run the country and the possibility of “un-geeking” health policy for the layperson.
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CDC I Told You So: Debunking Stuff with Dr. Lisa Richardson
HUGE show today with Dr. Lisa Richardson, Division Director, Cancer Prevention and Control at the CDC. As the first guest I've ever had on the show with a BS in Zoology, Lisa is the real deal. She's down to earth, speaks "person" and "science" simultaneously, and has been a 25+-year first-hand witness to the staggering revolution and evolution of cancer care across these United States. In this rapid-fire "no stupid questions" episode, Lisa and I talk about everything from simulated humans, plummeting screenings, mRNA, and telehealth, to 1990s’-era patient activism, the rise of survivorship, cancer, and COVID — and the prospect of 2021 "Vaccine Parties" being the exact opposite of pox parties. Hilarity ensues. Enjoy the show.
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